Mum's Net


Saturday, 14 March 2015

out of sync

Hello again...

It has been a long break for this blog's existence mainly due to changes around Odessa's life. I needed to have a long think what direction this blog - which is in the end Odessa's story - needs to go to .

I think roughly year ago we were finally given a clear diagnosis of Odessa being on the Autistic Spectrum (high functioning)  and the new unknown journey has began. Everything has changed and, well nothing changed too. I was told my child is autistic and it sounds big. Still Odessa was exactly the same kid she was before the day of her diagnosis. She was still the same amazing, quirky little girl with very strong opinions. She was still crazy about cats and asked 1000 questions a day. 

Of course not everything was all sweetness and light. Odessa also struggled with many things for a while now. She was often withdrawn and unresponsive at school, she found it difficult to cope with busy/loud environments and it was  impossible for her to play in a larger group of children.  For many reasons we decided to seek help and finally after a long and emotional time seeing all sort of professionals we finally got to the stage of getting a diagnosis. 
People often ask me was it difficult to hear it. The honest answer is it wasn't. It was a relief - it gave me a direction of approach I towards my daughter''s issues. I have never felt closer to her than I feel now.  

Naturally I couldn't write this blog and anything else around Odessa without mentioning her condition as it is very strong factor influencing our every day life. I have to say after doing research, I became fascinated with the subject and it dominates my life at the moment.

It was never in my nature just to just rely on information passed to me, I needed to learn more to able to support Odessa. 

So yes the blog is going to change. I was thinking for a long time whether to open a new blog, perhaps to make it more clear, but I decided it would be shame to leave abracadabra behind and as I mentioned before Odessa is still Odessa and I am still me, we are still in love with London, have big weakness for a beautiful design and regularly visit charity shops. 

Now little updates: Odessa is six now and in year one of the mainstream primary schools. Despite her issues she is doing very well. The girl is very clever, makes me proud every day. She is currently in highest levels in her reading groups, she can read fluently, every single time I see her on a bed reading quietly to herself it melts my heart. It's such a big step to be able to read. More importantly, just like Tim and I, she absolutely loves it. Her greatest pleasure in life at the moment is  Mr Men books. She knows everything about them, it's her main topic and all sort of games and conversations refer to the books. Her favourite characters are Mr Clever and Little Miss Wise. The concept of being clever is very appealing to her. 

She also can swim now (again I am super proud) - she absolutely loves being under water.

Lelia is unbeatably  number one and nothing matches a visit to Peckham and it's never enough when it comes to playing with her.

She is still crazy about cats and is constantly trying to convince us we should have three cats not two. 

She can be very difficult to reason with at times (due to her condition and stubbornness, inherited from her dad). She often lacks flexibility in her thinking - the older she gets the more it becomes an issue, creating regular dramas which we generally learn to laugh about!

I think the most fantastic thing about Odessa being autistic is how she is trying understand the world around her and question pretty much everything. She takes nothing for granted and needs abstract concepts to be logically explained to her. She has amazed us on a few occasions. 

How would you answer these:

'Why there is 5 after 4 not 4 after 5 ?'

'Why are babies born naked?'

'Why there are no bones in our hair?"

She also questions the sources of my knowledge regularly by asking - "How do you know it mummy?" She even suggested on a few occasions when she was not fully satisfied with my answers that I should come back to school. Her disbelief in many of Tim's attempts educate her result in her calling him Mr.Nonsense.

Could I love her more? No!

We are treating Odessa to occupational therapy - which is giving us brilliant results - but I will have to create a separate post dedicated to this subject as it's quiet complex. 

We went to Africa for Christmas which must be one of the most amazing experiences ever! (pictures to follow!).

Anyway that's it for the moment, I can't really go into details as I would never finish this post. Next time I will not only continue this little diary of Odessa's but will also attempt to touch the subject of autism in children. I hope I will manage to post something on regular basis.

We are having a lazy and very slow Saturday today. Odessa is sick - another lovely virus from school (the reason she might look a bit sad and tired in the these few pictures). I have to admit despite feeling sorry for Odessa -  it's kind of nice to just stay at home all together and don't hurry anywhere. We have been reading a Mr Men book in bed, watching a documentary about penguins and playing a memory game. One of those simply 'nothing special happening' days I am going treasure for long time. 


  1. 'it was really long I know why... I am very sorry about diagnosis but... I remember when we were in hospital with our 'problem' in the section callled neurological isssues and I was surround by kids with epilepsja or authism and did not know if it's about my kid too.. I spoke with parents and achieve some knowledge....If it's let say 'light kind' of this disorder you can live with this normally or even get rid of it with a theraphy. Odessa sees to be just sensitive child to me - needs attention and explanation more than other kids, but Iam sure you' re perfect parents to cope with this and I wish you all the best. Because of folllowing your blog Iam more than sure you wll manage and she s well!!!
    Call me if you want 07904034808....
    it's a pittty we couldn't meet....kisses

  2. Every child is unique and different in their own way; autistic spectrum aside. It can be very enlightening to step back and take a look at the world through your autistic child's eyes and see what they see; how they see it. Just because it is different than our vision doesn't mean it is wrong or should be reprimanded. Rather, let's embrace it.

    Brendon Hudgins @ Medcare Pediatric Group